The story so far…

Firstly to say that my lovely boxes arrived safely and I’m so pleased to finally have them. I’ll show you some pictures and tell you more about Privvi tomorrow. I’m going to be very busy packing them this weekend.

I’m going to bring you up to date with my hand in the meantime so you have the full story to this point…

I finished five weeks of daily hospital treatment last week. They had again detected an infection and put me on max doses of two intravenous antibiotics.

This was stressful and upsetting but I was slightly more prepared this time. I started writing my blog while I was on the drip (which could take up to 3 hours) and had a mid-line fitted: a bit like a large cannula that’s put in surgically for up to 6 weeks. It was quite painful and will leave me with a small scar. 

This time I tried to set myself a routine: I walked with friends most days and focussed on Privvi and my work when I felt overwhelmed and sad. I also went to bed early as I felt very low and found it difficult to talk. Luckily my children are 13 and 15 so I could explain my need to ‘get through it’ which they understood. I’m glad it’s over but it took it out of me mentally and physically and I lost a lot of weight. I think that’s why I’ve had a horrible cold this week.

I had to stop the treatment early due to problems with my heart and blood pressure. They think I developed an intolerance to the strong medication and I’m currently trying to get a referral to a cardiologist so I can get my heart checked.

The biggest news, through all of these recent complications, is that the operation last year failed. They gave me the option of freezing the thumb joint (meaning that it will be stuck in the same position so I can no longer bend it) or having the operation done again. I’m going to try again but they can’t do anything until they clear me for the infection. I’m having an MRi scan next Tuesday so please keep your fingers and toes crossed for me.

The ‘lightbulb’ moment

I was in hospital daily when the UK went into lockdown in March. They’d found an infection in my hand which needed IV antibiotics due to concern it had gone into the bone. It had been there since the op and had been caused by an undissolved stitch. I had an op to remove this and wasn’t allowed to wash my hand for 2 weeks. I was in hospital daily with Covid cases on the rise so unsurprisingly, I used a lot of hand gel during this time! 

The IV treatment was painful and invasive and they had trouble getting cannulas in. By the end of the four weeks they had run out of undamaged veins to use. I found this treatment and the further risk of infection massively invasive and stressful. I’ve always been super-careful about hygiene and particularly wary of hospitals and toilets. 

I finished the treatment at the end of March and was told the infection had gone. It felt like my ordeal had finally finished and I faced the lockdown in a fragile state. It was later in the year I learnt that things were far from over.

Following lockdown, at the beginning of July, I found myself preparing for my first trip away. I was ordering toilet seat covers and sanitising wipes when my product idea popped into my head. I just wanted to have everything I needed to feel safe to hand when I went into a toilet. As I mentioned, even pre-Covid, toilets were always a thing for me, especially portaloos! I decided to call it Privvi (thanks to my granny who called her loo the Privvy) 

Tomorrow I’m going to bring you a video to share some exciting news…

Feeling helpless

I’ve often found myself saying ‘I just wish I’d broken the bone’ This may seem odd but ligaments are tricky to repair and heal. I was facing a week in plaster, four in a splint and a further eight to twelve of physio with my hand in and out of a brace.

Along with the mental challenges came the practical reality that I could no longer function normally day to day. All of the things I took for granted: driving, washing, eating, cooking, I simply and suddenly couldn’t do. This was a shock and left me feeling totally helpless. I felt invalidated as a fully functional human. I started to withdraw, didn’t go out and didn’t see friends. I felt conscious of my brace and hated people asking questions as it embarrassed me. I felt it had started to define me.

Apart from family and a few close friends I don’t think people realised the severity of the injury, the consequences or the implications. I felt very anxious and constantly afraid that the repair would fail and I’d be left with a hand I could no longer use. 

I remember, on a brighter note, trying to eat an avocado one day and chasing it around the plate with a knife. It’s actually quite funny when I think about it now although I got quite upset and cross at the time. It is actually impossible to cut and eat an avocado with one hand!

The Operation

This carried its own risks: nerve damage, infection, failure. It was possible they’d need tendon from my wrist if the ligament was too damaged. I was afraid of the scars and would only know when I woke up after the op. 

Looking back I think I was still in a state of shock at that point. The operation seemed to go well and I woke up with my wrists intact feeling in reasonably good spirits.

I’d expected pain for the first week or two and took back to back painkillers and didn’t sleep much. I’d had my hand cut open, the ligament sewn and repaired and a metal wire put through my thumb joint to stop it moving. The metal stuck out through the skin on the side of my thumb and I couldn’t bear to look at it.

The period that followed was the darkest time of my life. I remember watching ‘Stranger Things’ and feeling like I was living in the ‘Upside down’ For those who haven’t watched it, this is another dimension and a dark, evil place where monsters live. I felt like I was living parallel but separately to everyone around me. I couldn’t sleep and was in pain most of the time. Later it transpired that this was due to infection in one of the stitches. It was the most overwhelming, loneliest time of my life. I remember
dreading being awake and grateful to sleep. 

For anyone who is experiencing anything like this my message would be ‘You are not alone’ There will be others, if not many of us, who at any time, are experiencing illness or injury or a life experience that separates us in some way from the day-to-day. ‘Hold tight’

The Accident

This is my hand last October. Crazy really. I’d fallen heavily onto my hand slipping on a wooden floor rushing through the hallway. The damage was immediately visible and my thumb and forefinger swollen and bruised beyond recognition. It was 2 weeks before I saw the consultant who broke the news to me. I remember hearing a loud crack when I fell – my thumb and forefinger had taken the full weight of my fall splayed apart. I learnt there was a high chance I’d snapped the ligament in my right thumb which was confirmed by an MRi scan. It was explained that this left my joint unsupported and without repair I wouldn’t be able to use my right hand. Also that, even with the operation, I’d never regain effective use of my right hand. It’s actually painful to write that. I try not to think about it and focus on the positive thought of my work now. The accident changed the way I saw the world and I found a strength I didn’t know I had. If it hadn’t been for my accident I don’t think I’d have had the conviction to pursue my idea.

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