Firstly to say that my lovely boxes arrived safely and I’m so pleased to finally have them. I’ll show you some pictures and tell you more about Privvi tomorrow. I’m going to be very busy packing them this weekend.
I’m going to bring you up to date with my hand in the meantime so you have the full story to this point…
I finished five weeks of daily hospital treatment last week. They had again detected an infection and put me on max doses of two intravenous antibiotics.
This was stressful and upsetting but I was slightly more prepared this time. I started writing my blog while I was on the drip (which could take up to 3 hours) and had a mid-line fitted: a bit like a large cannula that’s put in surgically for up to 6 weeks. It was quite painful and will leave me with a small scar.
This time I tried to set myself a routine: I walked with friends most days and focussed on Privvi and my work when I felt overwhelmed and sad. I also went to bed early as I felt very low and found it difficult to talk. Luckily my children are 13 and 15 so I could explain my need to ‘get through it’ which they understood. I’m glad it’s over but it took it out of me mentally and physically and I lost a lot of weight. I think that’s why I’ve had a horrible cold this week.
I had to stop the treatment early due to problems with my heart and blood pressure. They think I developed an intolerance to the strong medication and I’m currently trying to get a referral to a cardiologist so I can get my heart checked.
The biggest news, through all of these recent complications, is that the operation last year failed. They gave me the option of freezing the thumb joint (meaning that it will be stuck in the same position so I can no longer bend it) or having the operation done again. I’m going to try again but they can’t do anything until they clear me for the infection. I’m having an MRi scan next Tuesday so please keep your fingers and toes crossed for me.